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CF patients lied to..again


draiocht23

Well-known member
Joined
Aug 24, 2007
Messages
308
Surprise, surprise - the government has lied to cystic fibrosis patients again.

The promised isolation unit in St, Vincent's will now not become a reality until 2011
at the earliest
A good friend of mine, who has CF, has been campaigning on this issue for years - even after the death of his sister, from the same disease.

This is another example of the disgusting nature of our government and health service. The senseless deaths of young Irish people mean nothing to them.

The lack of isolation facilities at the hospital for CF patients was condemned in a 2005 report by UK consultant Dr Ronnie Pollock. It said the lack of segregation and isolation for CF patients was dangerous and there was a risk patients who picked up infections would sue. It noted that Ireland has the highest incidence of CF of all European countries and there were “also strong indications that outcomes in Ireland are worse”.
HSE postpones promised new cystic fibrosis patients' facility - The Irish Times - Fri, Mar 27, 2009
 

greengoose

Active member
Joined
Aug 31, 2007
Messages
116
Seems that bankers and politicians don't suffer from this disease! Finian MacGrath had this issue promised to him if he rowed in with FF. I wonder how you feel now Finnian?

Disgusting government.

Looking after the vulnerable in our society indeed.
 

greengoose

Active member
Joined
Aug 31, 2007
Messages
116
Also in today's IT, CF sufferer Orla Tinsley writes about the HSE decision here:

Trading people's lives for economic survival is sick and heartless - The Irish Times - Fri, Mar 27, 2009

Once again, some of the most vulnerable people in our society have been let down by the powers that be.

Absolutely shameful.
Orla's article brigs it all home especially the part where she says that the HSE were not serious in their promise and that the sufferers should have seen it coming.

What claptrap will Harney come out with? And indeed who will be next on the list for let down?

Shameful is not a strong enough word for this. Disgusting would be more apt.
 

Kev408

Well-known member
Joined
Feb 26, 2006
Messages
5,124
Orla's article brigs it all home especially the part where she says that the HSE were not serious in their promise and that the sufferers should have seen it coming.

What claptrap will Harney come out with? And indeed who will be next on the list for let down?

Shameful is not a strong enough word for this. Disgusting would be more apt.
I was at a pub quiz in the Goose last Monday. Aaaanyway, what would you have us do? It's all very well moaning about the situation but how would you rectify the situation? (pls be aware that you're not an elected person and therefore you have no obligation to do anything other than moan.)
 

Charco

Member
Joined
Feb 3, 2009
Messages
39
How low can this government actually go?


Only yesterday the papers were reporting the salary increases and bonuses for HSE officials. Today, we hear about that the building of the 30-bed CF Unit at Vincent's has been 'delayed'. A Unit that wil give those suffering and from an insidious but almost invisible illness the chance to live a better, longer life.

However, nobody should be surprised - this Unit has been in the pipeline since the early 1990's. Promise after promise to even begin construction has been broken again and again.

In addition to the 8-bed unit that opened last summer, a 6-bed unit was promised this year as a stopgap until the main unit was to open. Those extra 6 beds will not now be provided.

Funding for the Unit was promised and allegedly ringfenced. The economy may be in tatters and they will say the money is not there, but if the funds was set aside where is it now?

Other scandals aside for a moment, how many health scandals can a government survive?

I'd like to think this government can't sink any lower but sincerely doubt it.
 

johnfás

Well-known member
Joined
Feb 22, 2007
Messages
2,727
Yes this is absolutely terrible, particularly given that Ireland has the highest prevalence of CF in the world.
 
B

birthday

This is really very sad.
Life expectancy in the six counties is significantly higher I understand.
Think of all the money wasted in the HSE on overpaid consultants, persistent absentees retaining jobs, restricted practices, advisers, spin doctors, expenses etc
Shame on you Brendan Drumm, Harney and shame on all the vested interests in the HSE that have wasted so much money that the money for this cannot be found.
I believe that many people in the HSE are absolute Bas*ards
 

cactusflower

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Joined
Oct 1, 2008
Messages
1,285
The HSE is a construction of the Harney/FF privatisation project, not the individual employees.

CF patients are being robbed of half their lives.

Murder would not be too strong a word for it.
 

spidermom

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Sep 13, 2008
Messages
9,189

blucey

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Jan 4, 2007
Messages
366
And yet ....44% of us voted for them.
CF patients (I have a cousin who died from this) should adopt a simple tactic : a continual stream of people with the disease to go to Fatso and Lennys clinics and ask the hard qestions above. And record the answers.
 

spidermom

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Joined
Sep 13, 2008
Messages
9,189
And yet ....44% of us voted for them.
CF patients (I have a cousin who died from this) should adopt a simple tactic : a continual stream of people with the disease to go to Fatso and Lennys clinics and ask the hard qestions above. And record the answers.

Every clinic in the country should be targeted...not once but continually...course it will have to be us that do it...our CF friends will be too busy occupying trolleys in A+E trying not to contract a fatal infection
 

spidermom

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Sep 13, 2008
Messages
9,189
People with CF should not have to trail around anywhere. They should ask us to go on their behalf.
Absolutely...imagine what infections they would be exposed to from the government Tds!!!!
 

spidermom

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Sep 13, 2008
Messages
9,189
It's about WHERE you prioritise!!!

Thats all...haven't they suffered long enough!!


Irish Medical Times | The Irish Medical Times Blog | Decision to postpone CF unit at St Vincent's should be reversed - CF Association



There is enough money to build the much-needed new ward at St Vincent's that will house a 30-bed isolation unit for CF patients – if CF is prioritised, and if the Government takes into account dropping prices of building costs, the CEO of Cystic Fibrosis Association of Ireland told IMT.
Godfrey Fletcher said he wants the decision, announced at a recent Joint Oireachtas Committee on Health, reversed.
It has been a 'psychological blow' to all CF patients and their families, said Fletcher.
The unit was supposed to be in operation by 2010. The HSE's position is that capital funding to begin building will not be available until 2011 at the earliest.
Dr James Reilly, the Fine Gael Health Spokesperson, said the postponement is 'disgusting'.
The Government is trying to regain control of the public finances by hitting the most vulnerable instead of starting at the top, he said.
“The lack of appropriate cystic fibrosis beds exposes patients to cross-infection and shortens their lives which are already tragically brief. It is absolutely indefensible that we are still forcing these patients into overcrowded wards that place them literally in mortal danger."
 

kittyn

Active member
Joined
May 11, 2007
Messages
113
It's about WHERE you prioritise!!!

Thats all...haven't they suffered long enough!!


Irish Medical Times | The Irish Medical Times Blog | Decision to postpone CF unit at St Vincent's should be reversed - CF Association



There is enough money to build the much-needed new ward at St Vincent's that will house a 30-bed isolation unit for CF patients – if CF is prioritised, and if the Government takes into account dropping prices of building costs, the CEO of Cystic Fibrosis Association of Ireland told IMT.
Godfrey Fletcher said he wants the decision, announced at a recent Joint Oireachtas Committee on Health, reversed.
It has been a 'psychological blow' to all CF patients and their families, said Fletcher.
The unit was supposed to be in operation by 2010. The HSE's position is that capital funding to begin building will not be available until 2011 at the earliest.
Dr James Reilly, the Fine Gael Health Spokesperson, said the postponement is 'disgusting'.
The Government is trying to regain control of the public finances by hitting the most vulnerable instead of starting at the top, he said.
“The lack of appropriate cystic fibrosis beds exposes patients to cross-infection and shortens their lives which are already tragically brief. It is absolutely indefensible that we are still forcing these patients into overcrowded wards that place them literally in mortal danger."
Problem here is that the HSE need to keep what budget they have left for their spin doctors etc....... the mis-management of funds within the HSE would make for interesting reading id say........... This is a total disgrace not that im surprised, which is a sad thing to have to admit......... Priorities are not where they need to be in any way, shape or form............
 

spidermom

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Joined
Sep 13, 2008
Messages
9,189
Problem here is that the HSE need to keep what budget they have left for their spin doctors etc....... the mis-management of funds within the HSE would make for interesting reading id say........... This is a total disgrace not that im surprised, which is a sad thing to have to admit......... Priorities are not where they need to be in any way, shape or form............

Thanks for that Kitt...problem is WHY???????????
 

kittyn

Active member
Joined
May 11, 2007
Messages
113
Thanks for that Kitt...problem is WHY???????????
Wish I knew the answer to that......... Our so called Health Care system is in a mess and has been for years, the celtic tiger did nothing but provide more money to squander.......... Makes me so angry..........
 
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