• Due to a glitch in the old vBulletin software, some users were "banned" when they tried to change their passwords at the end of February. This does not apply after the site was converted to Xenforo. If you were affected by this, please us viua the Contact us link in the footer.

HSE refuses to fund ‘last chance’ trip. Another sad day for Ireland.


bagel

Well-known member
Joined
May 7, 2007
Messages
1,410
HSE refuses to fund

A young man is fighting for his life because the HSE has refused to fund a trip to New York for a “one last chance” t
treatment.
After three years of battling it in Ireland, and the cancer showing further progression despite surgery in 2011 and 2012, James’ doctors recommended that he attempt to gain admission to Sloan-Kettering.
They are operating a clinical trial, testing a approach to treating James’ disease.
The treatment that could save James’ life would cost €80,000.
A HSE spokesperson said: “The HSE Treatment Scheme, as provided under EU Regulations in conjunction with the Department of Health and Children guidelines, allows access to proven treatment in the public healthcare system of an EU member state for approved patients.”
James’s mother, Geraldine Gill, said: “They told us they don’t provide funding for treatment on trial.
“But we have tried everything that is available in Ireland. James has just this one last chance."


The HSE's own protocol for expenditure on treatment for seriously ill patients is that expenditure on treatment is justified if there is a reasonable chance that the patient will live for another year with a reasonable quality of life.
I believe this protocol actually takes priority over their policy on not funding clinical trials.
I wonder has it in this instance?
 


Sync

Well-known member
Joined
Aug 27, 2009
Messages
28,776
How can you show there's a reasonable chance? By the very nature of the fact that it's on trial, it hasn't been shown to work to the US's standards. The govt can't go around funding trips around the world for clinical trials. From the article it seems like the only call really.
 

Mercurial

Moderator
Joined
Jun 4, 2009
Messages
88,171
How sad a day would it be if more people had died or suffered serious illnesses because this trip was paid for and the treatment failed?

When you have limited resources, you have to prioritize which means that some people will die who might otherwise have lived. The hope is resources will be distributed in a way which minimizes this.
 

Sync

Well-known member
Joined
Aug 27, 2009
Messages
28,776
The two aren't related here. The HSE aren't pleading poverty, they're saying it's the wrong thing to do because clinical trials are unproven.
 

SilverSpurs

Well-known member
Joined
Nov 27, 2009
Messages
5,550
Its far more important to treat binge drinkers in A & E on a Friday and Saturday night isn't it.
 

ruserious

Well-known member
Joined
Jan 3, 2011
Messages
29,621
The Gov has backed down on these matters before when the public outcry was loud enough.
Hopefully this is one way of aiding that effort.

To those who say clinical trials are unproven, they always will remain unproven unless patients get the opportunity of testing it out.

Ireland should become proactive in this area rather than sitting back and allowing young people to die without offering a last chance.
 

RobertW

Well-known member
Joined
Feb 11, 2011
Messages
20,483
The unfortunate sufferer of this rare illness would be treated by medical teams who are experts in this particular area.

Taking part in such a trial could not only enhance the care required but could prove beneficial in finding better cures and treatments for this rare form of cancer.

It's a shortsighted decision from the HSE. A "will it work?" approach.
 

Aindriu

Well-known member
Joined
Jun 28, 2007
Messages
8,702
But it can fund nearly 2 million medical cards?
And junkets for ministers & TDs all over the world for no good reason.
 

Rural

Well-known member
Joined
Apr 28, 2007
Messages
27,908
When millions were lost due to PPARS in the Health Service, Martin Cullen called it pocket money.
 

L'Chaim

Well-known member
Joined
May 2, 2007
Messages
18,965
This sounds like an appeal for charitable donations to be given. I do understand the HSE's position that they can only fund proven treatments, which this trial treatment isn't. So I think the mother, God love her, is using whatever she can to try and get private donations from sympathetic people, in order to try one last option that might work and save her son's life. And if she gets the funding and the treatment works then future cases would probably be funded by the HSE as 'proven treatment'.
 

Nermal

Well-known member
Joined
Apr 9, 2010
Messages
1,327
The Gov has backed down on these matters before when the public outcry was loud enough.
Which was a mistake. Treatment should be resourced on a rational basis (following the guideliness of something like NICE), not doled out to whoever shouts loudest.
 

Rural

Well-known member
Joined
Apr 28, 2007
Messages
27,908
When Mary Harney invented the HSE, the only thing that changed was the signage, letter heads etc. at great expense. It's still the auld Health Boards. But kind of worse, because more people are dying.
 

ruserious

Well-known member
Joined
Jan 3, 2011
Messages
29,621
Which was a mistake. Treatment should be resourced on a rational basis (following the guideliness of something like NICE), not doled out to whoever shouts loudest.
Someone in the HSE was paid 846k last year. If he was paid a mere 766k for the year, that child could live.
There is no justice there what ever way you look at it.
 

Analyzer

Well-known member
Joined
Feb 14, 2011
Messages
46,189

New Threads

Popular Threads

Most Replies

Top